Protecting Our Voice in the Work As patient advocates, many of us begin this work fueled by passion—by lived experience and a desire to create change. For some of us, that work is shaped by bringing multiple perspectives at once. For me, I am a Sickle Cell Warrior, a caregiver, a former pharmaceutical executive, a […]
What is patient engagement in research? Patient engagement in research means actively involving patients and carers in the planning, design, and execution of research projects. It ensures that research is aligned with real-world needs and experiences. Patient engagement in research is no longer a “nice to have” — it is becoming a fundamental requirement […]
Building Stronger Patient Voices – From Experience to Impact On March 21, the Philippine Alliance of Patient Organizations (PAPO) launched its Foundations of Patient Leadership & Advocacy Series — a timely and important initiative aimed at strengthening patient organizations from the ground up. At PiCC United, we often talk about lowering the barrier to […]
Spotlight Interview Caitlin and Clarinda, Founders of Not Just Patients At PiCC United, we are proud to feature an inspiring interview with Caitlin and Clarinda, the founders of the Not Just Patients podcast. We chose to highlight their voices because they represent a new generation of unique and influential patient advocates dedicated to advancing meaningful […]
