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PiCC Pulse News
– brings together the most important updates from our projects, collaborations and patient-led initiatives.
Protecting Our Voice in the Work
Protecting Our Voice in the Work As patient advocates, many of us begin this work fueled by passion—by lived experience …
What is patient engagement in research?
What is patient engagement in research? Patient engagement in research means actively involving patients and carers in the planning, design, …
Building Stronger Patient Voices – From Experience to Impact
Building Stronger Patient Voices – From Experience to ImpactOn March 21, the Philippine Alliance of Patient Organizations (PAPO) launched its …
Not Just Patients – Amplifying Voices, Inspiring Change
Spotlight Interview Caitlin and Clarinda, Founders of Not Just PatientsAt PiCC United, we are proud to feature an inspiring interview …
Strengthening patitne communities across Europe
Northern Ireland, UKWelcome Home Heart Failure roundtable with patients, carers, and healthcare teams. Paris, FranceWelcome Home HCM roundtable with patients …
Reinventing Healthcare Through Authentic Partnership
Reinventing Healthcare Through Authentic Partnership The PFAnetworkis a community The PFAnetwork (a program of PFCCpartners) is a community of patients, family …
Why PiCC United Is Working to Make Patient Involvement the Norm
From Patient to Partner: Why PiCC United Is Working to Make Patient Involvement the NormKnowledge + partnership + structure = …
Modern healthcare is based on the idea of “evidence-based medicine”
Building a better evidence base Modern healthcare is based on the idea of “evidence-based medicine”. Clinicians have access to huge databases …
Overcoming Structural Obstacles to Patient Involvement in Research
An Advocate for Patient Inclusion in Research Overcoming Structural Obstacles to Patient Involvement in ResearchPatient advocates have learned to manage …
What Is the EU Biotech Act?
What Is the EU Biotech Act – and Why Does It Matter?The EU Biotech Act is a major new legislative proposal from the European Commission – the part …
What is patient involvement in healthcare?
What is patient involvement in healthcare? Patient involvement in healthcare refers to the active inclusion of patients and carers in …
Patient Involvement in Health Technology Assessment ebook
Patient Involvement in Health Technology Assessment New international book on patient involvement has just been publishedThe long-awaited second edition of …
Patients’ voices are being taken seriously
Patients’ voices are being taken The voice of patients is on the move – and this time, the system is …
The Power of Working Together: Our Journey in the Asia-Pacific
Our Journey in the Asia-Pacific A Powerful Story of Collaboration in the Asia-Pacific RegionWe are proud to share an inspiring …
Think Big: From Lived Experience to System Change
From lived experience to system change News from our partnerMandy C. Dalyfrom Irish Neonatal Health Alliance (INHA) shares why patient …
Strengthen your credibility as a health advocate
Strengthen your credibility as a health advocate New guideBeing a patient advocate is not just about sharing your story – …
What is a clinical trial?
What is a clinical trial? Hmm… What is a clinical trial?A clinical trial is an important form of research where …
Clinic or sofa?
Clinic or sofa? Patients prefer blood sampling at homeHow do patients prefer to have their blood samples taken – at …
6-Month Report – A Strong Start for PiCC United
6-Month Report A strong Start for PiCC United6-Month Report – A Strong Start for PiCC UnitedWe have reached an important …
Key elements of a involvement contract – What should you be aware of?
Key elements of a involvement contract – What should you be aware of? What should you be aware of?When involving …
Interactive map – overview of clinical trials in the EU
Interactive map provides an overview of clinical trials in the EU Are you going to or going to participate in …
What is the European Medicines Agency (EMA)
What is the European Medicines Agency (EMA) – and why is it important to you as a patient?When we get …
Putting the patient in the driver’s seat – A new era of patient-centred healthcare
Putting the patient in the driver’s seat – A new era of patient-centred healthcare A new era of patient-centred healthcareHealthcare …