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Project

Mental Health Support in Clinical Trials

Help us make research more human – by sharing your story.

 

Led by:  PiCC United

Supported by:  H. Lundbeck A/S

What is the project about?

Supporting mental health and wellbeing during clinical trials. 

Many people face emotional and mental health challenges when taking part in clinical trials, yet these important aspects are often overlooked by those who design and run them. This project, supported by Lundbeck, is an opportunity to address this. Together, we aim to better understand the emotional challenges associated with clinical trial participation and use those insights to make the experience more supportive, respectful, and humane for future participants.

 

Your role and what to expect?

We want to hear from people like you who have taken part in clinical trials. By sharing your experiences, you will help us co-develop practical recommendations that can make trials easier, safer, and more human. Everything you share will be treated with confidentiality and respect. Your voice matters. Let’s make clinical trials more human.

Who can take part?

We are looking for individuals who meet the following criteria to contribute to this important project. If you’ve been part of a clinical trial, your story matters. By telling us about your experience, you’ll help us improve how future trials support people’s wellbeing.

 

      • Personal experience with clinical trials
        – You have participated in a clinical trial (in any therapy area) as a patient. 
      • Interest in mental health and wellbeing
        –You are open to sharing how your emotional wellbeing was supported – or perhaps not – during your trial.
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      • Ability to participate in a 1.5–2 hour digital session
        – You can join an online group discussion with other participants.
        – You will receive reading material before the meeting.
      • Optional: Willingness to provide feedback
        – You will be invited to review a short draft summary of what we’ve heard before it is shared with the company. We want your feedback before anything is finalized.
      • Language
        – The session will be held in English. You do not need to be perfect – just comfortable sharing your thoughts.
      • Age
        – You must be 18 years or older.
      • Respect and inclusivity
        – We expect all participants to be respectful, open to others’ experiences, and contribute in a supportive way

What to Expect and How We Work

Your wellbeing matters to us. That’s why we begin each session by agreeing on a few simple ground rules together. These include keeping the conversation confidential, listening to one another with respect, and always remembering that it’s perfectly okay to pause, say “no thanks,” or step away at any time.

We want you to feel safe, respected, and fully in control throughout the process. These ground rules are there to help create a calm and supportive space where everyone feels comfortable contributing.

 

Here’s what will happen:

 

    • Before the session:
      You’ll receive a short document to read through in your own time (about 30–45 minutes)
    • During the session:
      We’ll meet online for 1.5–2 hours to talk about your experiences and ideas in a small, respectful group
    • Afterwards (optional):
      If you’d like, you can share feedback on a short draft document (about 30–60 minutes)

You are in control at all times – you can pause or withdraw whenever you like. 

Your Time Matters – and Is Valued

We know your time and experience are valuable. That’s why we offer €115 EUR per hour, based on international Fair Market Value (FMV) standards. This is our way of saying thank you for your time and your story.

You will be compensated for:

 

✔ Reading and preparing before the session

✔ Participating in the online group session

✔ (Optional) Providing feedback afterwards

 

In total, you can expect to spend between 2 and 3.5 hours – and never more than that..

What about contracts?

Everyone who takes part signs a simple master agreement. This ensures clarity and mutual respect from the beginning.

→ Sign our master contract now and →Fill in your payment details

If you have questions about legal or financial matters, you’re not alone. We’ve made it easy to understand in our we take care of you guidance.

Accessing materials

All materials you need will be shared in a secure Microsoft Teams folder. Don’t have Teams yet? No worries – it’s free and easy to set up. Guide to install Teams here. 

Your lived experience matters. Together, we can make clinical trials more compassionate and human.

About PiCC United

PiCC United is built on the belief that people with lived health experiences should have a seat at the table – and be recognised for the value they bring. We connect patients and carers with opportunities to share their insights through interviews, co-creation, testing, and real collaboration that shapes the future of healthcare.

Founded by patient advocates, PiCC United exists to ensure your voice is heard – and fairly compensated.

Your experiences as a patient or carer are invaluable. They help shape better healthcare solutions, products, and services. At PiCC United, we believe your voice deserves to be heard – and respected. In fact, companies and researchers are often ready to compensate you for sharing your insights and lived experiences.

All qualified and verified applicants are carefully reviewed by PiCC United. We then present a shortlist to the sponsor, who makes the final decision on who best fits the opportunity.

Your time, knowledge, and personal experiences are valuable – and we make sure they are respected. At PiCC United, we’re committed to fair compensation for your contributions to research, development, and health innovation

We’re here to support you throughout the process – and if you have any questions about payment, you’re always welcome to reach out.

Read more here

Email us at lsn@piccunited.org to get started or ask questions.