Website Policy
Last updated: 19 May 2026
The PiCC United website provides information about our organisation, activities, educational resources, and collaborative projects.
PiCC United is an international, patient-led non-profit organisation legally established as Stichting PiCC United, a Dutch foundation (stichting) registered in The Hague, The Netherlands.
Our website is designed to offer free and accessible information to patients, carers, patient organisations, researchers, healthcare professionals, and other stakeholders interested in meaningful patient involvement and engagement.
Purpose of the Website
The purpose of this website is to:
- Share information about PiCC United and our mission.
- Provide educational resources, tools, and practical guidance.
- Promote meaningful patient involvement and engagement.
- Inform visitors about projects, partnerships, and events.
- Support capacity building for patients and patient organisations.
- Facilitate collaboration across the healthcare ecosystem.
The content on this website is provided for general informational and educational purposes only.
Confidentiality and Data Protection
Any personal information collected through this website, including names, email addresses, telephone numbers, and other contact details, is handled confidentially and in accordance with applicable data protection laws, including the General Data Protection Regulation (GDPR).
We do not sell personal data and only share information with trusted service providers where necessary to operate our website and services, or where required by law.
For more information, please see our Privacy Policy: Privacy Policy
Transparency of Funding
PiCC United is funded through a combination of:
- Grants
- Sponsorships
- Donations
- Service agreements
- Educational activities
We are committed to maintaining our independence and ensuring that all funding arrangements are transparent and aligned with our governance framework, Code of Conduct, and conflict of interest policies.
Financial support does not grant sponsors or partners editorial control over our content, strategic priorities, or governance decisions.
Editorial Independence
All website content is reviewed by PiCC United’s leadership team and relevant subject matter experts as appropriate.
Content reflects the views and experiences of PiCC United and its contributors.
Unless explicitly stated, content should not be interpreted as medical, legal, or financial advice.
Medical Disclaimer
PiCC United is a patient-led organisation.
While some contributors may have professional expertise, the information provided on this website is for educational and informational purposes only and should not replace professional medical advice, diagnosis, or treatment.
Always consult a qualified healthcare professional regarding any medical concerns.
External Links
This website may contain links to third-party websites for informational purposes.
PiCC United is not responsible for the content, accuracy, or privacy practices of external websites.
Advertising Policy
PiCC United does not host third-party advertising or paid advertisements.
Where sponsors or partners are acknowledged, this is done solely for transparency and does not constitute endorsement of products or services unless explicitly stated.
Intellectual Property
Unless otherwise stated, all content on this website, including text, graphics, logos, and educational materials, is owned by or licensed to Stichting PiCC United.
Certain materials may be made available under Creative Commons or other licences as indicated. Our name, logo, and branding may not be used without prior written permission.
Website Availability
We make reasonable efforts to keep this website accurate and available, but we do not guarantee uninterrupted access or that all information is always up to date.
We reserve the right to modify, suspend, or remove website content at any time without notice.
Contact
If you have questions about this Website Policy, please contact:
Stichting PiCC United
Email: hello@piccunited.org
Website: PiCC United