Protecting Our Voice in the Work As patient advocates, many of us begin this work fueled by passion—by lived experience and a desire to create change. For some of us, that work is shaped by bringing multiple perspectives at once. For me, I am a Sickle Cell Warrior, a caregiver, a former pharmaceutical executive, a […]
Spotlight Interview Caitlin and Clarinda, Founders of Not Just Patients At PiCC United, we are proud to feature an inspiring interview with Caitlin and Clarinda, the founders of the Not Just Patients podcast. We chose to highlight their voices because they represent a new generation of unique and influential patient advocates dedicated to advancing meaningful […]
From Patient to Partner: Why PiCC United Is Working to Make Patient Involvement the Norm Knowledge + partnership + structure = better lives and fewer complications. This isn’t just an ambition. It’s a necessity. Today we know that the healthcare system can no longer function optimally if the patient is merely a passive […]
Building a better evidence base Modern healthcare is based on the idea of “evidence-based medicine”. Clinicians have access to huge databases of medical research. Their training and professional development are informed by research, and their clinical guidelines, practice protocols and diagnostic aids are evidence-based. Conferences and journals help busy practitioners keep abreast of a non-stop […]
