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Patient Groups News
– brings together the most important updates from our projects, collaborations and patient-led initiatives.
What is patient engagement in research?
What is patient engagement in research? Patient engagement in research means actively involving patients and carers in the planning, design, …
Building Stronger Patient Voices – From Experience to Impact
Building Stronger Patient Voices – From Experience to ImpactOn March 21, the Philippine Alliance of Patient Organizations (PAPO) launched its …
Patient Involvement in Health Technology Assessment ebook
Patient Involvement in Health Technology Assessment New international book on patient involvement has just been publishedThe long-awaited second edition of …
Strengthen your credibility as a health advocate
Strengthen your credibility as a health advocate New guideBeing a patient advocate is not just about sharing your story – …
What is a clinical trial?
What is a clinical trial? Hmm… What is a clinical trial?A clinical trial is an important form of research where …
Key elements of a involvement contract – What should you be aware of?
Key elements of a involvement contract – What should you be aware of? What should you be aware of?When involving …
Interactive map – overview of clinical trials in the EU
Interactive map provides an overview of clinical trials in the EU Are you going to or going to participate in …
Psychological safety
Psychological safety – an important key to strong communities in associationsIn many associations, both volunteers and employees play a large …
Payment and insurance in patient advocacy roles
Payment and insurance in patient advocacy roles When your voice becomes counselling – what does that mean for you as …
How patients help innovate better healthcare technology
How patients help innovate better healthcare technology Why should patients have a say?Imagine you get a new phone, but it’s …
What is Polypharmacy?
What does the difficult word ‘Polypharmacy’ mean? – and why is it important to you as a patient?Polypharmacy means that …
Shared decision making starts with you
Shared decision making starts with you – Taking care of your health.Taking care of your health with conscious choices When …
Patient Involvement: An Empowering Journey for Patients and Carers
An Empowering Journey for Patients and Carers Patient InvolvementWhen faced with an illness, either as a patient or carer, the …
10 Signs of a Healthy Relationship with Yourself
10 Signs of a Healthy Relationship with Yourself – fundamental part of a good lifeA healthy relationship with yourself is …
What is Pharmacovigilance?
What does the difficult word ‘Pharmacovigilance’ mean? – and why is it important to you as a patient?Pharmacovigilance is a …
Make Volunteering a Valuable Part of Your CV
How to Make Volunteering a Valuable Part of Your CV Volunteering is more than a good deedIt can also be …
The positive impact of volunteering on social life and quality of life
The positive impact of volunteering on social life – and quality of lifeVolunteering is an important driver of both social …
A guide to making information easy to read
A guide to making information easy to read – An essential tool for patient organizationsEnsuring accessible information is a key …
What is the European Medicines Agency (EMA)
What is the European Medicines Agency (EMA) – and why is it important to you as a patient?When we get …
Artificial Intelligence (AI)
How can you use Artificial Intelligence (AI) in your work as a patient advocate? Artificial Intelligence (AI) As technology rapidly evolves, …
The Role of Patient Engagement Today
The Role of Patient Engagement Today The Role of Patient Engagement nowPatient engagement is a key component of healthcare development …
Transparent contracts for patient engagement or involvement
Transparent contracts for patient engagement or involvement Transparent contractsAs patients, we are increasingly involved in research, development and collaboration with …
10 essential tips to improve your presentation skills
10 essential tips to improve your presentation skills Mastering public speaking is a coveted skill that can boost both your …